The South West Parents Group Swnnpg Brand

Who are we?

The parent group is made up of parents & carers who have lived experience of caring for a child that has been admitted to one (or more) of the 12 neonatal units within the South West of England. We aim to ensure that, across the group’s membership, experiences of all 12 of the SW neonatal units are represented.

We currently have 30 group members from across the South West who have different levels of engagement.  We are a welcoming, caring and supportive group and we regularly seek to encourage new interest and membership. 

What do we do?

The SW Neonatal Network Parent Group provides the family perspective and supports the network team to improve families’ experiences of neonatal care in the South West region.

Some of the ways the group achieves this is by:

  • Providing parent experience and perspective to support the development of new and ongoing initiatives across the SW network
  • Representing the patient, parent and family voice at Network meetings and on regional service reviews
  • Developing innovative ideas to support families experiencing neonatal care across the SW network
  • Reviewing relevant network documents to ensure they are addressing family requirements appropriately and are accessible to all
  • Working closely with the SW neonatal networks charity partner, the NICU foundation, in supporting charitable initiatives that aim to improve the experience of families with babies in a SW neonatal unit.

Support the network team to improve consistency of care and access to relevant services across the 12 SW neonatal network units from the parent / carer perspective

Parent Group Meetings and Communications

The Parent Group meets online quarterly and is currently chaired by the Evaluation & Engagement Lead (Georgina French). All meetings are arranged and facilitated by the SW neonatal network team. 

A private parent group members Facebook and WhatsApp group is used for communications between meetings to share details regarding upcoming events and meetings, highlight relevant documents for review, request parental feedback on specific issues, to provide updates on ongoing network projects and as a forum for members to share and discuss ideas.

Terms and conditions

Membership is voluntary and there is no obligation to remain part of the group.  Written notice is requested if you intend to leave the parent group so that your details can be removed from the data base for data protection reasons.

We encourage parents to be involved only as much as they have capacity for, and understand that this may fluctuate depending on work and family life pressures.

Due the potentially emotional nature of this work we recommend that parents wait at least 12 months post discharge before volunteering for the Network.

Find Out More / Join

To find out more about the group please contact Georgina French georgina.french@uhbw.nhs.uk.

Alternatively you can complete the form below with your name and email address and a member of the SW neonatal network team will respond to you as soon as possible.

Thank you