Palliative Care and Bereavement Support

In this section you will find the links to charities and support groups that exist to support families of infants receiving palliative care or for families in grief.

The organisations include national groups and local groups in the South West region. If you would like assistance to contact a charity please contact us via swneonatalnetwork@uhbw.nhs.uk and one of our team will help you with this.

  • Palliative Care

    National Organisations

    Peeps This is a national charity which supports families with an infant affected by HIE (hypoxic-ischaemic encephalopathy) - www.peeps-hie.org

    Together for Short Lives This is a national charity which helps families with an infant, child or young person living with a life-limiting condition - www.togetherforshortlives.org.uk

    The Rainbow Trust This is a national charity providing emotional and practical support to families who have a child with a life-limiting illness. They are in different parts of the country and the South West team covers: Bristol, Bath, North East Somerset, North Wiltshire and South East Oxfordshire - www.rainbowtrust.org.uk

    Local Organisations

    Local Children’s Hospices: Care and support for families who have a child with a life limiting condition

    Children’s Hospice South West have 3 hospices in Bristol,

    Barnstaple and St Austell - www.chsw.org.uk     

    Acorns Hospice in Worcester - www.acorns.org.uk             

    Helen & Douglas House in Oxford - www.helenanddouglas.org.uk                                                 

    Julia’s House in Devizes - www.juliashouse.org

     

  • Bereavement

    National Organisations

    If your baby has died shortly after birth, you might face financial strain on top of your grief. It’s important to know what you’re entitled to and who to talk to - If your baby has died shortly after birth | MoneyHelper

    Child Bereavement UK This is a national organisation that supports grieving families and those caring for them. They have a confidential listening service for anyone affected by the death of a child -  www.childbereavement.org.uk 

    Child Death Helpline This is a national freephone helpline. All the volunteer staff are bereaved parents who are trained and supported by professionals - www.childdeathhelpline.org.uk

    Compassionate Friends This is a national organisation which offers support to all families bereaved after the death of a child. They can offer group or one to one support - www.tcf.org.uk 

    Cruse Bereavement Care This is a national organisation which offers support and counselling to all bereaved people. They also have a website specifically for bereaved young people -  www.cruse.org.uk     

    For young people - www.hopeagain.org.uk 

    SANDS Stillbirth and Neonatal Death Society This is a national organisation which offers support for bereaved families after the death of a baby. This support includes a telephone helpline and local support groups run by and for bereaved parents - www.uk-sands.org

    SANDs United Football Club: National organisation with football clubs across the UK including the South West -  www.sands.org.uk/get-involved/sands-united-fc

    Children of Jannah A national organisation for supporting bereaved parents, centred on the Muslim faith - www.childrenofjannah.com

    Jewish Bereavement Counselling A London based organisation for bereavement support, centred on the Jewish faith - https://jbcs.org.uk

    Saying Goodbye This is part of the Mariposa Trust a national charity supporting families affected by baby loss, with information, advice and support - www.sayinggoodbye.org

    FSID-Foundation for the Study of Infant Deaths This is a national organisation that offers support for families bereaved through a sudden infant death. They have a confidential helpline and a network of befrienders - www.lullabytrust.org.uk     

    Twins Trust Bereavement Support Group This is a national support group for families who are bereaved after the loss of a baby or babies during a multiple pregnancy. They offer a befriending service - www.twinstrust.org  

    Bliss This national organisation provides support and information for parents of babies in intensive and special care, this includes bereavement support -  www.bliss.org.uk  

    Email ask@bliss.org.uk 

    SOFT-Support for Trisomy 13/18 and Related Disorders This national organisation offers support and information to the parents of children with trisomy 13 or 18 and related disorders and rare conditions for whom no other organisation exists. This includes bereavement support - www.soft.org.uk   

    The Lullaby Trust This is a national charity offering bereavement support following the unexpected loss of a baby or young child. They have a helpline and webchat service - www.lullabytrust.org.uk 

    Winston’s Wish A national charity for bereaved children. Their helpline offers support to parents and carers looking for childhood bereavement advice and support -  www.winstonswish.org

    Petals Counselling A London based counselling charity but also have support groups for Dads and Grandparents - Petals - Groups | Facebook

    Kicks Count Provide a bereavement related story books aimed at siblings following a baby loss and following a pregnancy after a loss - www.kickscount.org.uk/shop/i-will-always-remember-our-baby-book

    Local Organisations

    Jeremiah’s Journey This charity provides support to children, young people and their parents/carers when the future feels uncertain or when hope feels lost, in Plymouth and the surrounding areas - https://jeremiahsjourney.org.uk/

    Balloons A charity in Exeter, Mid and East Devon which offers support to bereaved children - www.balloonscharity.co.uk 

    Children & Families in Grief A charity in South Devon with a team of therapists to support children and their family -  www.childrenandfamiliesingrief.co.uk/about/us

    Grief Encounter A charity that covers the South West region, with a centre in Bristol. The charity mainly supports bereaved children and young adults to the age of 25 but will also support parents if the charity is working with their child -  www.griefencounter.org.uk

    Wiltshire Tree House A new charity providing bereavement support to Children and young people up to the age of 25, the aim of the charity is to offer services across the whole of Wiltshire - www.treehousewiltshire.org.uk

    The SANDS Snowdrop group Pregnancy and Baby loss support charity based in Yeovil. They offer group peer support monthly now taking place in person and also a befriender service for individual support -  The Snowdrop Group - Yeovil SANDS - Home | Facebook

    Snowdrop Men A closed Facebook local group for Dads who have suffered the loss of their baby - www.facebook.com/groups/625525414541478/?ref=share#bl

    Towards Tomorrow Together Pregnancy and Baby loss support charity based in Bridgwater. Offer a range of services to families, including birth planning, memory boxes, doula support, group support and holistic therapies for families both experiencing a loss or in subsequent pregnancies - www.towards-tomorrow.com

    Little Daffodils  A pregnancy and baby loss support charity based in Chard. Run support groups - Little Daffodils - Home | Facebook

    Rosie Crane Trust Support parents who have suffered the bereavement of a child at any age in the Somerset area. Offer monthly drop-ins, 24 hour listening ear helpline and counselling support - www.rosiecranetrust.org

    Counselling4Yeovil Provides free counselling for couples who have suffered a loss in Yeovil or surrounding areas and self-refer - www.counselling4yeovil.org.uk

    Josephine’s Star A charity offering support to grieving families in the Somerset area. Offer one-to-one support sessions working with children to explore their grief and develop coping strategies, tailoring this to each child whilst designed to be fun. Working in conjunction with families, carers and schools to ensure the most positive outcomes for children - www.josephinesstar.org.uk

    Penhaligon’s Friends A charity in Cornwall offering support to bereaved children, young people, parents and carers - https://penhaligonsfriends.org.uk/

    Luna’s Fund A charity in the Plymouth and surrounding area offering practical support services to help bereaved parents - https://www.lunasfund.com/